Medical Team

Throughout Alexandra’s first 2 years of life, we have been busy assembling some of the top doctors in the country to help us navigate living with Pitt Hopkins.

  • Pediatrician (Pediatrix)
  • Developmental Pediatrician (Phoenix Children’s Hospital)
  • Pediatric Neurologist (Phoenix Children’s Hospital)
  • Pediatric Neurologist (Children’s Medical Center of Dallas, Texas)
  • Pediatric Neurologist (Massachusetts General Hospital – Boston, Mass.)
  • Pediatric Geneticist (Phoenix Children’s Hospital)
  • Pediatric Geneticist (Children’s Medical Center of Dallas, Texas)
  • Pediatric Geneticist (Massachusetts General Hospital – Boston, Mass.)
  • Pediatric Gastroenterologist (Phoenix Children’s Hospital)
  • Pediatric Gastroenterologist (Massachusetts General Hospital – Boston, Mass.)
  • Pediatric Pulmonologist (Massachusetts General Hospital – Boston, Mass.)
  • Pediatric Nutritionist (Phoenix Children’s Hospital)
  • Pediatric Dermatologist (Center for Dermatology and Plastic Surgery, Phoenix)
  • Pediatric Ophthalmologist (Arizona Pediatric Eye Specialists)
  • Pediatric Orthopedist (Phoenix Children’s Hospital)
  • Optician (Family Eyecare of Glendale)
  • Allergist (Arizona Asthma & Allergy Institute)
  • Pediatric Dentist (Pleasant Pediatric Dentistry)

She also has an amazing therapy team that helps her with acquiring critical skills to achieve developmental milestones. It is often a very slow process – and not ever easy, but these amazing individuals believe in our little baby girl and are working steadfast at getting her stronger. Three days a week are therapy days in our house, this new routine sure does keep us busy, but it is so worth it. Therapy is the only way to help train her brain to do even the most mundane of tasks.

  • Physical Therapist – Team Lead (United Cerebral Palsy of Central Arizona)
  • Occupational Therapist (United Cerebral Palsy of Central Arizona)
  • Feeding Therapist (United Cerebral Palsy of Central Arizona)
  • Speech Therapist (United Cerebral Palsy of Central Arizona)
  • Developmental Specialist (United Cerebral Palsy of Central Arizona)
  • Vision Teacher (Foundation for Blind Children)
  • Early Intervention Support Coordinator (Division of Developmental Disabilities)
  • Literacy & Augmentative and Alternative Communication (AAC) consultant
  • Assistive Technology Consultant (Tobii Dynavox)

In the future we are looking to add in music therapy (she LOVES music and humming along to sounds) and hippotherapy where she will use horseback riding as a therapeutic means to continue to improve her coordination, balance, and strength.