Just before the Christmas holiday I posted a new video that I made to help raise awareness for our Pitt Hopkins kiddos and the often “silent” world we find ourselves living in.

In case you missed it, here it is…

“In a world where we typically spend a majority of our day communicating with others…those diagnosed with Pitt Hopkins Syndrome simply cannot. Most of those affected by Pitt Hopkins are clinically nonverbal or pre-verbal, as some parents say. Silenced by a genetic abnormality that prevents them to speak in a way that so many of us take for granted. From our Pitt Hopkins family 650+ strong around the world…to you and yours this holiday season. May you use your voice to help spread compassion, hope and healing to those who need it most.”