Many have said 2016 is a year that can’t leave us quick enough. I do have to agree. It was the most difficult year I never imagined having to face. Growing up, falling in love, getting married, starting a family and building a home are all things I dreamed my future would entail.

Being a parent to a child with special needs was something that I honestly never thought I would be capable of doing. You can’t plan for it, you don’t expect it, you aren’t ever ready for it…for this different and sometimes scary life.

But, through it all, these past 365 days have taught us more than we ever could have imagined learning. Our beautiful, joyful little girl, Alexandra Nicole continues to be our beacon of light. Shining brightly along this new path. Her sweet “voice” can silence a noisy room, her giggles can brighten any day, her tender touch can soothe any heartache…her sweetness runs deep into her soul.

She will help change the lives of others that choose to embrace our life with Pitt Hopkins Syndrome.

Here are a few moments from 2016. Happy New Year!